The interview process

In this initiative, the process is just as important as the product.

There are three features of the index that make the process unique:

  • It is GIPA in action. From the very beginning, the index has been developed and will be implemented by and for people living with HIV. This includes every stage of the process-from development of the index, interviewing, analysis and advocacy.
  • ‘Side by side' interviewing
  • Proactive system of referrals

The People Living with HIV Stigma Index, like other studies that collect data from people, must observe certain standards with regard to ethical issues and data protection. In each country where this survey is carried out, those responsible for conducting the study should make sure that it conforms to that country's ethical and data protection requirements. This user guide does not replace such requirements, but it provides some general guidance to be followed in all contexts in which the People Living with HIV Stigma Index is being conducted.